HPP Privacy Guide
Know Your Rights
Myths and Facts about the HIPAA Privacy Regulation
Introduction to Health Privacy
What You Can Do to Protect Your Privacy
Exposed: A Health Privacy Primer for Consumers
Health Privacy Checklist for Consumers
HPP Releases Best Practices for Employers Offering PHRs
The Latest News
Support HPP
Our Privacy Policy
Welcome to Health Privacy 101
A substantial barrier to improving the quality of care and access to care is the lack of enforceable privacy rules. Individuals share a great deal of sensitive, personal information with their doctors. This information is then shared with others, such as insurance companies, pharmacies, researchers, and employers, for many reasons. Yet unlike other personal information, there is very little legal protection for medical records.
Without adequate privacy protections, individuals take steps to shield themselves from what they consider harmful and intrusive uses of their health information often at significant cost to their health. Congress has tried to pass a comprehensive federal law protecting the confidentiality of medical records but has been unable to come to consensus.
Below are some introductory materials on health privacy. Please visit the rest of our Web site for additional resources, the latest developments in health privacy, and information about federal and state law.
HPP Privacy Guide
Know Your Rights
In order to protect your personal medical records, you need to know what protections and rights you have and what you can do if you believe they have been violated. The information in this brochure is an overview of those rights and protections.
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Privacy Rights (68K)
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Myths and Facts about the HIPAA Privacy Regulation
Download the attached file for a PowerPoint slide presentation on the myths and facts about the HIPAA privacy regulation. (Notes: it might take a moment to download this file.) November 2003.
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Last updated 11/03. (130K)
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Introduction to Health Privacy
Download the attached file for a Powerpoint slide presentation on health privacy. (Note: Some graphics may take a while to download). July 2001 (not updated since then).
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Slide Presentation (1835K)
[download] |
What You Can Do to Protect Your Privacy
Checklist for consumers
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Last Updated: October 22, 2002 (19K)
[download] |
Exposed: A Health Privacy Primer for Consumers
by Janlori Goldman and Zoe Hudson
December 1999
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Primer (16 pages)
[description] [download] |
Health Privacy Checklist for Consumers
HPP Releases Best Practices for Employers Offering PHRs
On December 19th the Health Privacy Project, the California HealthCare Foundation, and a group of corporate leaders released Best Practices for Employers Offering PHRs.